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Participation in thrill-seeking activities by patients with hypertrophic cardiomyopathy: Individual preferences, adverse events and physician attitude

American Heart Journal Apr 14, 2019

Papoutsidakis N, et al. - Whether thrill-seeking activities (TSAs) are safe for hypertrophic cardiomyopathy (HCM) patients was investigated in this study by conducting an anonymous online survey with adult HCM patients. In the survey, participants were asked to report if, before and following HCM diagnosis, they participated in 11 activities (rollercoaster riding, jet skiing, rafting, bungee jumping, rappelling, paragliding, kayaking/canoeing, motor racing, snowboarding, BASE jumping and skydiving). They were also asked about major (ICD shock, syncope) or minor (nausea, dizziness, palpitations, chest pain) adverse events associated with these activities, and pertinent advice from any physicians. The survey was completed by 647 patients with HCM. Participation in ≥1 TSAs was reported by 571 (88.2%) patients (participant age 50.85 ± 14.21, 56.6% female, 8,143 post-diagnosis participations), with 9 reporting a major event and 181 reporting a minor event during or soon after the TSA . They found that the occurrence of major adverse events due to participation in thrill-seeking activities was rare in this cohort.

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